Mom is overwhelmed
She forgot about dad who is stressed to the limit. I hate the method we have to use right now to attach her O2 system. Waking up every few hours to make sure Mattea has her O2 on yet. Then trying to get her to eat for dad another interesting event or series of events.
As Lou said some things we kind of knew about, the heart issue, the tonsils, the hearing issue and now we have more knowledge and less answers so it is like being on a roller coaster that just keeps going faster and the turns get sharper and steeper and there is no brakes in sight. You have got to love the care these kids get in the orphanage and the medical knowledge about them you get as the new parent it is like a easter egg hunt you have to find all the hidden medical issues and hope that they are all do able.
Best way I know of to keep the heart beating and the person on the edge of there seat is to adopt one of these kids and go for the ride. It will last a lifetime and who knows where it will end.
Now she has gotten so she will eat for me and take a bath while giving dad a shower because she just loves to splash in the water. She is so much fun watching her explore the house with her O2 line dragging along the floor and the cats chasing it and she and the cats checking each other out. Sometimes they just sit and look at each other and once in a while Mattea will reach out towards them and they run out of her reach. She loves to get into the diapers and see how many she can spread around the room, loves to beat with the spoons on anything available, standup at the windows and watch the dogs outside and most of all seeing just how far she can go before she runs out of O2 tubing.
Lou and I have our moments since Mattea has come home but the most upsetting is taking off the little stickers that hold the O2 tubing on her face and seeing the skin come off as well. We have a new way to do it and hopefully we can use that today when Lou gets up from her nap and hopefully it works as it is just sickening to see her little face all ripped up from the stickers we started out with.
She has just pulled the O2 off again so have to go and put it all back on for the umtenth time that is getting old quick.
dad
Cool site to save lots of $$$
Prayers needed...
Mattea's Button---
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In Memory: Breanna Arielle Puderbaugh
3/27/94 - 3/3/08--- We miss you, BreBre!
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Dennis!!!
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About Me
- Lou
- Babywearing, cloth-diapering, homeschooling mama to LOTS of kiddos, dedicated wife to Stew, and full-time pediatric ortho/rehab nightshift charge nurse...whew!
Oh how I feel for you! One day I actually counted the number of times I put Ralph's cannula back on. It ended up being something like 20 times, but it felt like a hundred! Maybe she can go without stickers for awhile? Will she keep the cannula on at all without them? I know it's hard to see her face getting hurt. You guys are doing a great job. Keep doing your best and God will make up for the rest.
ReplyDeleteMattea is a stubborn little girl some days and the cannula is put back on about every 30 seconds yes it gets old quick but sometimes her facial expression is worth the hassle.
ReplyDeleteNo if she can take it off she will. I don't blame her my mother had to have oxygen before she died and she hated the cannula also.
Just had to reattach everything as she had pulled it all off. Fun in the fast lane
Is a mask an option? So sorry things are tough right now! Praying for you! God Bless.
ReplyDeleteI'm happy to be reading this after what seems to be the worst of it is resolved. I remember having to use occlusion patches on Dan's eye when he was 4 and seeing the skin come off around his eye when I removed it, day after day, was so hard to bear. It stinks that it's 22 years later and they're still doesn't seem to be a lot of skin-friendly adhesive options. Hang in there, Daddio.
ReplyDelete